The Hibbs Lupus Trust was founded in October 2011 by the Hibbs family after Viki was diagnosed with lupus aged just 25. Having never heard of lupus, let alone know anyone with the condition, searches of the internet brought back horror stories of an incurable illness. Left feeling isolated, the family decided the only option was to take action and set up a Trust to ensure other families didn’t go through this same experience whilst raising awareness to increase the chances of vital early diagnosis.
In July 2012, the Trust gained full charitable status & is proud to be members of the Fundraising Standards Board; as such we are committed to the principles of honesty, accountability and transparency with regard to fundraising. The Trust is run entirely by voluntary trustees, friends & supporters. We are a dedicated team where raising awareness is a way of life.
The Trust has established the first patient support group in Staffordshire. We also operate a free phone contact number where patients, their family and friends can contact us in order to gain information and advice about lupus from people whose own lives have been affected by the illness.
We are engaging with patients via social media platforms such as twitter & facebook encouraging conversation & we have become a trusted source of support & information to people around the world.
The aim of The Hibbs Lupus Trust is the relief of sickness and preservation of good health among sufferers of lupus, in particular but not exclusively by:
- providing information, advice and support to such people, their families and carers;
- advancing education of the condition for the public’s benefit;
- providing, and assisting in the provision of facilities, support services and equipment not normally provided by the statutory authorities for the benefit of lupus patients of the Mid Staffordshire NHS Foundation Trust