About Us - The Hibbs Lupus Trust

We’re a family on a mission to raise awareness of lupus.

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About the Trust

The Hibbs Lupus Trust is a registered charity, founded in 2011 by the Hibbs family.

OUR HISTORY

What we do

We provide support and information to anybody affected by or concerned about lupus.

We raise awareness of the symptoms of lupus to encourage early diagnosis and reduce life threatening complications associated with the condition.

We raise funds to provide facilities, equipment and services for NHS hospitals and Foundation Trusts for the benefit of lupus patients.

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The Hibbs Lupus Trust - Cannock Hospital

How we do it

Our patient support group - We set up our first lupus patient support group in Staffordshire. The group meets regularly and provide the opportunity for people living with lupus to meet, share experiences and support each. We aim to establish more support groups to help more people with lupus.

Information advice line - Our information advice line provides support and information for those affected by lupus, their family and friends. Call us on FREEPHONE 0800 633 5118 Monday to Friday from 9am to 5pm. Outside of these hours please email us.

Our online community - Through Twitter and Facebook we provide support and information to lupus patients and put them in touch with others who find themselves in a similar situation.

FACEBOOK GROUP

Raising awareness

We work tirelessly to raise awareness of the symptoms of the lupus through our online communities – Facebook and Twitter, World Lupus Day events, through our wristbands, t-shirts and bags available from our shop, our work with the media, fundraising events and through our army of volunteers.

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Lupus warrior flare pack

We have been working on some care packs for lupus warriors experiencing a flare.

Knowing that it can be the little things that make a difference when the force of a flare strikes, we hope these packs will bring a little relief and a smile to someone going through a tough time.

You can nominate someone who you would like to send a care pack to and we will do the rest. Just let us know a few details and we can tailor the pack.

Providing equipment

The money that we raise through donations, challenge events and fundraising in the community helps to fund equipment that wouldn’t otherwise be provided at NHS hospitals.

We have donated a £3,000 vital signs monitor and are now preparing to purchase a Nailfold Videocapillarosope for Cannock Hospital at a cost of £20,000 that will help in the early diagnosis of lupus and other connective tissue diseases.

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How we are funded

We rely completely on donations from individuals and organisations to fund our work and without the help of people like you - running, cycling, jumping and baking for us, our work wouldn’t be possible.

We receive no government funding.

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