We’re a family on a mission to raise awareness of lupus.

We are a UK based charity dedicated to transforming the lives of those affected by lupus. Our mission is driven by compassion, fuelled by generosity, and bound by a shared determination to fight lupus. From providing support and information, to raising funds and awareness, our work is rooted in the belief that together, we can make a difference. 

The Hibbs Lupus Trust Family

About the Trust

The Hibbs Lupus Trust is a registered charity, founded in 2011 by the Hibbs family.

Join us as we stand shoulder-to-shoulder with those battling lupus, helping them to not only survive, but thrive.

The Hibbs Lupus Trust Volunteers

What we do

We provide support and information to anybody affected by or concerned about lupus.
We raise awareness of the symptoms of lupus to encourage early diagnosis and reduce life threatening complications associated with the condition.
We raise funds to provide facilities, equipment and services for NHS hospitals and Foundation Trusts for the benefit of lupus patients.
The Hibbs Lupus Trust - Cannock Hospital

How we do it

Our patient support group - We set up our first lupus patient support group in Staffordshire. The group meets regularly and provide the opportunity for people living with lupus to meet, share experiences and support each. We aim to establish more support groups to help more people with lupus. 
Our online community - Through Twitter and Facebook we provide support and information to lupus patients and put them in touch with others who find themselves in a similar situation.
Lupus Walk - The Hibbs Lupus Trust

Raising awareness

We passionately dedicate ourselves to increasing lupus awareness. Our approach utilises diverse platforms, such as our vibrant online communities on Facebook and Twitter, along with our impactful World Lupus Day events. Our merchandise, including wristbands, t-shirts, and bags, available in our shop, serves as both a fundraiser and an awareness tool.

Additionally, our collaborations with media outlets and fundraising events amplify our reach. Our efforts would not be possible without the unwavering dedication of our volunteers, who are integral to our mission.

The Hibbs Lupus Trust Awareness

Lupus warrior flare pack

At The Hibbs Lupus Trust, we've been crafting personalised care packs for lupus warriors weathering a flare. Recognising that small comforts can make a significant difference during these challenging times, we aim to deliver a touch of relief and a spark of joy through these packs.

You have the opportunity to nominate a loved one for a care pack, and we'll handle the rest. Simply provide us with a few details, and we'll customise the pack to suit their needs.

The Hibbs Lupus Trust Care Pack

Providing equipment

Through the funds we raise via donations, challenge events, and community fundraisers, we provide vital resources not only for NHS hospitals but also for lupus patients at home.

In 2018, we made a significant contribution to Leeds Teaching Hospital to fund a dedicated Lupus Clinic.

We have funded a £3,000 vital signs monitor for Cannock Hospital and donated £16,623 to acquire two Nailfold Videocapillaroscopes for Cannock and Wolverhampton Hospitals. These critical tools facilitate early diagnosis of lupus and related connective tissue diseases.

Moreover, we've donated aids like bath hoists and mobility scooters to enhance the daily lives of lupus patients, helping them navigate their routines with increased ease and independence.

The Hibbs Lupus Trust UK

How we are funded

Our mission is fueled by the incredible generosity of individuals and organisations like yours. Your support is the lifeblood of our work, and it's what keeps our mission alive.

We don't receive any government funding, which is why we depend entirely on the compassion and dedication of people like you. Whether you're running marathons, cycling for a cause, taking leaps of faith, or baking up a storm, your contributions make a tangible difference in the lives of those affected by lupus.

With your support, we can continue to provide vital services, offer assistance to those battling lupus, and raise awareness about this challenging condition. Together, we're making a world of difference for individuals and families affected by lupus. Your commitment is the driving force behind our mission, and for that, we are immensely grateful.

The Hibbs Lupus Trust Website

How your money is spent

At The Hibbs Lupus Trust, we are committed to the highest standards of accountability and transparency. We are proud to be a registered charity, regulated by the Charity Commission. This status ensures that we maintain unwavering dedication to our mission and adhere to the most stringent ethical and operational standards.

In addition, we are registered with the Fundraising Regulator, further emphasising our commitment to responsible and ethical fundraising practices. Our collaboration with this regulatory body reflects our dedication to the well-being of our donors, supporters, and the community we serve.

Our dual registration, with both the Charity Commission and the Fundraising Regulator, underscores our pledge to maintain the highest level of integrity and professionalism in all our activities. Rest assured, when you support The Hibbs Lupus Trust, you can trust that your contributions are used responsibly and ethically to make a positive impact in the lives of those affected by lupus.

The Hibbs Lupus Trust Leeds Clinic