Whether you’re self-isolating or shielding at home, supporting loved ones or caring for those in the community, we’ll continue to stand by, support and speak up for people living with lupus.

We’ll be continually reviewing this content as the COVID-19 situation evolves across the UK and guidance changes over time. Therefore, it’s important to check this page regularly for updates.  

Covid - The Hibbs Lupus Trust

Latest updates - Tuesday 16th February 2021.

In England, shielding has been extended to 31st March (the previous end date was 21st February). Clinically extremely vulnerable (CEV) people are being told not to go out to work, shops or pharmacies, but you can go outside for exercise.

While government guidance is being continually updated, it currently recommends that: 

  • Clinically Extremely Vulnerable people are advised to shield.
  • People across the whole country must now stay at home apart from five exceptions:
  • for work, if people cannot work from home, such as those in the construction sector or key workers
  • to shop for necessities such as food or medicines
  • to exercise once per day at a local location. This can include with one other person from outside someone's household or support/childcare bubble
  • to provide care or help to vulnerable people
  • to attend medical appointments, get medical care or a coronavirus test, or to flee the threat of harm or violence.

All primary schools, secondary schools and colleges will move to online learning from tomorrow. However, nurseries can remain open while childcare and support bubbles will stay in place.

Guidance on shielding

Guidance on shielding and protecting people defined on medical grounds as extremely vulnerable - published on Tuesday 16th February - link to official update.

Should I be shielding?

If you were originally asked to shield, you will receive a letter or email with local advice for how to further protect yourself, and the support available to you.

A new group of people will be sent a letter asking them to shield. If you’ve been told to shield, you’re strongly advised not to attend work, school, college or university. You can read the guidance on who counts as clinically extremely vulnerable.

National Lockdown: Stay At Home - link to official announcement.

Summary: what you can and cannot do during the national lockdown

You must stay at home. The single most important action we can all take is to stay at home to protect the NHS and save lives.

You should follow this guidance immediately. The law will be updated to reflect these new rules.

The latest information can still be found on gov.uk and the NHS websites.

What vaccines are available?

There are many vaccines in development for COVID-19, but we don’t know exactly when each of these will be available. So far, two COVID-19 vaccines have been approved for use in the UK – the Pfizer/BioNTech vaccine and the Oxford AstraZeneca vaccine.

The Pfizer/BioNTech vaccine became available in early December 2020, and the Oxford AstraZeneca vaccine will be available from January 2021. 

The Pfizer/BioNTech vaccine will be available from December 2020, but this may only be in small numbers, with more doses and other vaccines becoming available in early 2021 as they are approved.

The Pfizer/BioNTech vaccine is not a live vaccine, and people who take medicines to suppress the immune system can have this vaccine. People on these types of drugs are on the priority list for vaccination that has been produced by the Joint Committee on Vaccination and Immunisation (JCVI).

If you’re not sure about whether you can have a particular vaccine, then speak to your healthcare team to discuss this. Don’t stop your usual treatment without discussing it with your healthcare team first.

It’s not recommended that people who are pregnant receive the vaccine. This is because there isn’t enough evidence about how the vaccine works during pregnancy. You also shouldn’t have the vaccine while breastfeeding or try to get pregnant within two months of having the last dose of the vaccine.

Both of the available vaccines are thought to offer short-term protection after the first dose. The second dose is important for long-term protection from COVID-19.

None of the proposed UK vaccines have live Coronavirus.

COVID Vaccination - The Hibbs Lupus Trust

Information and guidance from the Rheumatology Team at The Royal Wolverhampton NHS Trust.

We know social distancing and self-isolating can be hard and can take its toll on our mental health and wellbeing.

How are you feeling today? Talking to someone can make a big difference. Whether it’s to a relative, friend, partner or healthcare professional, never be afraid to open up about how you’re feeling.

Covid - The Hibbs Lupus Trust

Keeping active at home.

However you’re getting active, it’s all good for your health and wellbeing.

Lupus is a condition for life and during its course it may affect you differently at different times. Research shows that regular exercise leads to a decrease in symptoms and pain, and an increase in energy! It’s not enough to rely on medication. You also have to exercise.

When lupus is active, you may not feel like doing very much and it’s important to rest when you need to. Too much rest, however, will cause the muscles to weaken and may make you feel more tired. You need to find the right balance between rest and exercise.

If you can get moving from a seated position, the NHS have some seated exercises which can be followed by those with a range of health conditions, at a pace that suits you.

Virtual Challenges

NHS sitting exercises

NHS Pilates for beginners

Covid - The Hibbs Lupus Trust

Reusable Face Mask.

Our reusable face masks are made with a dual layer water repellent coated polyester, as well as a soft-woven inner polyester with antimicrobial properties for superior comfort and protection.

Key Features:

  • 100% water-repellent polyester with dust-proof membrane.
  • Antimicrobial comfort layer.
  • Washable & reusable.
  • Enhanced Qwick-Dri™ wicking technology.
Covid - The Hibbs Lupus Trust

Even apart, we’re in this together.

Send to someone special to remind them when there’s rain, to look for the rainbow. We’ve got this!

There is no membership to The Hibbs Lupus Trust. All of our services & information are provided for FREE.

You are not on this journey alone.

Covid - The Hibbs Lupus Trust

Lupus Warrior Flare Pack.

We have been working on some care packs for lupus warriors experiencing a flare.

Knowing that it can be the little things that make a difference when the force of a flare strikes, we hope these packs will bring a little relief and a smile to someone going through a tough time.  

You can nominate someone who you would like to send a care pack to and we will do the rest. Just let us know a few details and we can tailor the pack. 

Lupus Flare Pack - The Hibbs Lupus Trust

Find out how we help support people living with lupus.

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