Whether you’re self-isolating or shielding at home, supporting loved ones or caring for those in the community, we’ll continue to stand by, support and speak up for people living with lupus.

We’ll be continually reviewing this content as the COVID-19 situation evolves across the UK and guidance changes over time. Therefore, it’s important to check this page regularly for updates.  

Covid - The Hibbs Lupus Trust

Latest updates - Thursday 5th November 2020

While government guidance is being continually updated, it currently recommends that: 

  • From the 5th November, due to the rising numbers of COVID-19 cases, everyone must stay at home and avoid meeting people you do not live with, except for specific purposes. These new measures apply in England until at least the 2nd December. 
  • In general, you must not meet people socially. However, you can exercise or meet in a public, outdoors space with people you live with, your support bubble (or as part of a childcare bubble), or with one other person. 
  • When outside of your home, everyone should continue to practice ‘social distancing’ and wear a face covering in indoor locations including supermarkets and on public transport when travel is essential. 
  • Those who are considered extremely vulnerable were advised to take extra precautions during the peak of the pandemic by ‘shielding’ . Whilst the government has said that clinically extremely vulnerable people do not need to shield, it is advised that they work and stay at home as much as possible. However they are also encouraged to go outside for exercise. Those who are at a higher risk should follow social distancing practices especially carefully and minimise contact with others. 
  • Anyone who has tested positive for COVID-19, or who believes they may have it, should ‘self-isolate’ along with the people they live with for up to 14 days.

Guidance on shielding

Guidance on shielding and protecting people defined on medical grounds as extremely vulnerable - published on Wednesday 4th November - link to official announcement.

Should I be shielding?

If you were originally asked to shield, you will receive a letter or email with local advice for how to further protect yourself, and the support available to you.

New National Restrictions - link to official announcement.

There are likely to be differences at a more local level when required. If there’s different advice where you are, your local council website should have details. Find your local council at gov.uk

The latest information can still be found on gov.uk and the NHS websites.

We know social distancing and self-isolating can be hard and can take its toll on our mental health and wellbeing

How are you feeling today? Talking to someone can make a big difference. Whether it’s to a relative, friend, partner or healthcare professional, never be afraid to open up about how you’re feeling.

Covid - The Hibbs Lupus Trust

Keeping active at home

However you’re getting active, it’s all good for your health and wellbeing.

Lupus is a condition for life and during its course it may affect you differently at different times. Research shows that regular exercise leads to a decrease in symptoms and pain, and an increase in energy! It’s not enough to rely on medication. You also have to exercise.

When lupus is active, you may not feel like doing very much and it’s important to rest when you need to. Too much rest, however, will cause the muscles to weaken and may make you feel more tired. You need to find the right balance between rest and exercise.

If you can get moving from a seated position, the NHS have some seated exercises which can be followed by those with a range of health conditions, at a pace that suits you.

Virtual Challenges

NHS sitting exercises

NHS Pilates for beginners

Covid - The Hibbs Lupus Trust

Reusable Face Mask

Our reusable face masks are made with a dual layer water repellent coated polyester, as well as a soft-woven inner polyester with antimicrobial properties for superior comfort and protection.

Key Features:

  • 100% water-repellent polyester with dust-proof membrane.
  • Antimicrobial comfort layer.
  • Washable & reusable.
  • Enhanced Qwick-Dri™ wicking technology.
Covid - The Hibbs Lupus Trust

Even apart, we’re in this together.

Send to someone special to remind them when there’s rain, to look for the rainbow. We’ve got this!

There is no membership to The Hibbs Lupus Trust. All of our services & information are provided for FREE.

You are not on this journey alone.

Covid - The Hibbs Lupus Trust

Lupus Warrior Flare Pack.

We have been working on some care packs for lupus warriors experiencing a flare.

Knowing that it can be the little things that make a difference when the force of a flare strikes, we hope these packs will bring a little relief and a smile to someone going through a tough time.  

You can nominate someone who you would like to send a care pack to and we will do the rest. Just let us know a few details and we can tailor the pack. 

Lupus Flare Pack - The Hibbs Lupus Trust

Find out how we help support people living with lupus.

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