Living with Lupus

Lupus can affect everyday life in many different ways. From fatigue and flares to work, relationships and emotional wellbeing, here you’ll find practical information to help you understand what you’re experiencing and navigate life with lupus.

Living with lupus is different for everyone. Symptoms can change from day to day, and what feels manageable one week may feel very different the next.

You don’t need to understand everything at once. Explore the topics that are most relevant to you today.

Managing symptoms

Understanding common lupus symptoms and finding ways to manage their impact on everyday life.

Understanding lupus flares

Learn what a lupus flare is, how symptoms can change, how to track important changes, and when to contact your healthcare team.

Brain fog and lupus

Understand possible causes of memory and concentration problems, practical ways to cope, and when to seek medical advice.

Managing Pain with Lupus

Understand different types of pain linked with lupus, practical ways to manage symptoms, and when to seek medical advice.

Lupus fatigue

Understand why fatigue can happen with lupus, what may contribute to it, practical ways to manage energy, and when to seek medical advice.

Everyday life

Practical information for navigating work, routines, activity and the everyday challenges lupus can bring.

Lupus at Work: A Practical Guide to Adjustments, Disclosure and Flare Days

Find practical guidance on workplace adjustments, deciding whether to disclose lupus, managing flare days, and understanding your rights.

Exercise and lupus

Staying active can support strength, mobility and general health. Learn how to exercise safely with lupus and adapt activity around fatigue, pain and flares.

Sleep and lupus

Poor sleep can make pain, fatigue and everyday life harder. Understand what may disturb sleep, practical habits that may help, and when to speak to your healthcare team.

Sun protection and lupus

Understand photosensitivity, why UV protection matters, practical ways to reduce exposure, and when to speak to your healthcare team.

Your wellbeing

Looking after your emotional wellbeing is an important part of living with a long-term condition.

Mental wellbeing with lupus

Living with a long-term condition can affect how you feel as well as your physical health. Explore practical ways to look after your emotional wellbeing and find support when you need it.

Explore mental wellbeing

Family and life changes

Lupus can affect different stages of life, relationships and family decisions.

Pregnancy

Learn how lupus can affect pregnancy, why planning and specialist care matter, and what to discuss with your healthcare team.

Caring for a Loved One with Lupus: A Compassionate Guide

Practical advice for supporting someone with lupus, communicating well, and looking after your own wellbeing as a carer.

Practical tools

Simple resources to help you feel more prepared for appointments and everyday life with lupus.

Preparing for your rheumatology appointment

Keep track of symptoms, medicines and the questions you want to discuss with your healthcare team.

Have questions about lupus?

Our lupus questions and answers cover some of the things people most often want to know about diagnosis, symptoms, treatment and everyday life.

Explore lupus questions

You don’t have to navigate lupus alone

If lupus is affecting you or someone you care about, The Hibbs Lupus Trust is here with information, support and a community that understands.

Find support

About this information

This information is for general guidance and does not replace advice from your healthcare team. Your own care plan takes priority.

Information updated: September 2026

Sources used for this page