Since 2012, Giving Tuesday has been celebrated on the Tuesday after Black Friday & Cyber Monday to encourage people to do good. With your help we can be there for more people living with lupus. A £15 donation will provide a care pack for patients experiencing a flare.  “I received my care pack today, what…

Help support people living with lupus this Christmas by sending festive eCards to your loved ones. Brighten someone’s day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message, donation and click send!

We are deeply concerned about the impact the cost of living crisis is having and will have on people living with ill health and disability, and their carers.

Every year, many women diagnosed with lupus become pregnant and go on to have a healthy baby. However, lupus increases the chances of problems.

Stay cool indoors – many of us will need to stay safe at home this summer so know how to keep your home cool.

Don’t forget your water, sun screen and a sun hat when you are out and about this week. Avoid excess sun exposure as sunlight can cause a lupus rash or even trigger a serious flare of the disease itself. We’d love to see you wearing your sun hats, tag us in your social media photos!…

Dear Lilly, Jessica, Daisy and Matthias, I was so excited to receive your letter this week and read about your wonderful fundraising efforts at school. Your teacher, Mr Holt, has told me about the amazing children in Year 6 at Birkenshaw C.E. (C) Primary School and the outstanding work you have all been doing in…

If you shop Amazon Prime Day deals between 12th and 13th July 2022, you can make a difference: Simply shop at www.smile.amazon.co.uk or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile will DOUBLE donations to The Hibbs Lupus Trust at no extra cost.  The products available are exactly the same and at the same price as…

It is with great sadness that we announce the unexpected passing of our beloved Moira Bain. Nan to Viki & John, Moira has been our biggest champion. She has taken part in walks, constantly dressed up in fabulous costumes to host information stands and has been raising awareness and funds at more car boot sales…

Today on the 2nd anniversary of the first UK lockdown, we, along with 70 other organisations reflect on the toll that Covid has taken, and continues to take on people throughout the country. Two years on, the government have just launched their ‘Living with Covid’ plan which involves lifting most of the protective measures put…

Between the 6th and 13th May we’ll be celebrating and we’d love for you to join in! In celebration of World Lupus Day on 10th May we want you to Go Purple between 6th – 13th May.  Whether you’re at home, school or work, getting involved couldn’t be simpler! You could Go Purple for a day…

Our Newest Charity Challenge is Live Now! We’re really excited to reveal that we’ve added a brand new charity challenge to our calendar for 2022 – the Jurassic Coast Trek! Supporters can join us as we explore England’s only natural World Heritage Site, where dramatic coastal views and iconic landmarks await. Our two-day journey encompasses the…

Did you know that you can help us raise funds for FREE just by shopping online? Double Donations Week is back – a whole week of 2x donations when your supporters shop at participating stores, including John Lewis, Currys, TUI, Debenhams, MADE, QVC and over 20 more! From Monday 28th February to Sunday 6th March…

We are super excited to launch our own fundraising platform! Create YOUR personalised campaign page or start a team with friends and together we will beat lupus! Take a look around now!

Help support people living with lupus this Christmas by sending festive eCards to your loved ones. Brighten someone’s day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message, donation and click send!

Grabbing a #BlackFriday bargain? Black Friday might not be until 26th November, but the offers are already live! Use GiveasyouLive or Amazon Smile when you shop online to generate free donations for us too! Money raised will enable us to provide more support to people affected by lupus. Thank you!

Birmingham’s biggest and best running events return to the city’s streets in May 2022. Take your place on the Great Birmingham Run 10k or half marathon start line and be part of the celebration. Join #TeamHibbsLupusTrust on 1st May 2022. We are always grateful for your support and for any funds you can raise for us.…

Join us and take part in our Spooktacular Halloween Virtual Fancy Dress Competition! Head over to our Halloween page to and enter today! We can’t wait to see your spooky themed costumes!

Good luck to Sarah & Toni who are running the London Marathon on Sunday to raise awareness of lupus. Their dedication to the cause is admiral. Preparing for those 26.2 miles is no mean feat; the hours of training, the sacrifices made and the effort will ready them both but what will keep them placing…

Join #TeamHibbsLupusTrust at the London Marathon – 2nd October 2022. The London Marathon 2022 ballot is open from Sunday 3rd October 2021 until 21:00 on Friday 8th October 2021. If you are successful in the London Marathon public ballot for 2022 we would be delighted to have you join Team Hibbs Lupus Trust. We are…

Test your nerve with a tandem skydive! Imagine standing at the edge of an open doorway in an aircraft flying at 10,000 feet – the noise of the engines and the wind ringing in your ears with only the outline of distant fields below. Now imagine leaning forward out of that doorway and letting go…

Explore Hadrian’s Wall as we trek 25km from Housesteads Roman Fort to Wall Town National Park Centre, encompassing the most fascinating of ruins.  Hadrian’s Wall was built in AD122 on the orders of the Roman Emperor Hadrian, and stretched from the East to West coasts of Britain from Bowness on Solway in the West to…

On July 13 National Voices sent a joint letter to Prime Minister Boris Johnson signed and endorsed by nearly 60 member organisations including The Hibbs Lupus Trust asking him to urgently reconsider the decision to lift virtually all infection control measures. The letter said that to National Voices members it is becoming apparent that a…

National Voices and Centre for Mental Health have been speaking to people with long-term physical conditions and found they need more help and understanding from health professionals to support their mental health. They have launched a report and campaign called #AskHowIAm. We are proud to work alongside National Voices and support this campaign calling for compassionate…

If you shop Amazon Prime Day deals between 21st – 22nd June, you can make a difference: Simply shop at www.smile.amazon.co.uk or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile will DOUBLE donations to The Hibbs Lupus Trust at no extra cost.  The products available are exactly the same and at the same price as the…

Sadly our walk will be a little different this year, but just like our walks on Cannock Chase, we want to celebrate World Lupus Day and the courage of lupus warriors around the world. Even apart, we’re in this together.  Once again this year we’d like you all to ‘Turn Purple’ whether it’s a purple…

We’re inviting you, your family and friends to take part in Captain Tom 100 from Friday 30 April to Bank Holiday Monday 3 May 2021 to celebrate Captain Sir Tom Moore’s amazing achievements and raise vital funds for The Hibbs Lupus Trust!

Want to run 26.2 miles for lupus patients across the UK? If you receive a #LondonMarathon ballot place today, get in touch with us to find out how you can make a difference for people living with lupus! There is no fundraising target, just raise what you can! The London Marathon 2021 will take place…

With another national lockdown upon us, we’re gifting one 12 month subscription, and five 1 month subscriptions to Headspace thanks to the generous donations we have received. Mindfulness meditation is an effective way to train your mind and body to relax and to be more welcome and accepting of whatever comes your way. If you’ve…

Our reusable face masks are made with a dual layer water repellent coated polyester, as well as a soft-woven inner polyester with antimicrobial properties for superior comfort and protection. Key Features: 100% water-repellent polyester with dust-proof membrane. Antimicrobial comfort layer. Washable & reusable. Enhanced Qwick-Dri™ wicking technology. These products feature ear loops. Place the mask over the…

Help support people living with lupus this Christmas by sending festive eCards to your loved ones. Brighten someone’s day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message, donation and click send!

Same products, same experience. When you shop AmazonSmile, Amazon will make a donation to The Hibbs Lupus Trust.  Help us support more people living with lupus! Support us every time you shop!

It is time! Dig our your Christmas Jumper and help support people living with lupus. Post a selfie wearing your Christmas Jumper, donate £3 and feature in our supporter’s gallery. With your support, The Hibbs Lupus Trust can make sure that no one has to face lupus alone. £15 provides a care pack to patients…

We know this December may be very different from the usual. We know this year has been a difficult one for us all. As we come to the end of 2020 we want to give you a chance to take something positive from this year and help make a real difference. With your help we…

Grabbing a #BlackFriday bargain? Black Friday might not be until 27th November, but the offers are already live! Use GiveasyouLive or Amazon Smile when you shop online to generate free donations for us too! Money raised will enable us to provide more support to people affected by lupus. Thank you!

Knowing that it can be the little things that make a difference when the force of a flare strikes, we hope these packs will bring a little relief and a smile to someone going through a tough time.   You can nominate someone who you would like to send a care pack to and we…

With a second lockdown upon us, we’re gifting one 12 month subscription, and five 1 month subscriptions to Headspace thanks to the generous donations we have received. Mindfulness meditation is an effective way to train your mind and body to relax and to be more welcome and accepting of whatever comes your way. If you’ve…

The pumpkin spotting trail is a COVID-secure activity for Halloween instead of trick or treating. A new idea has been circulating social media proposing that rather than knocking on doors and handing out sweets, residents should put a pumpkin in their window. On the evening of October 31, trick or treaters should instead take part…

If you shop Amazon Prime Day deals on 13 & 14 October, you can make a difference: Simply shop at www.smile.amazon.co.uk or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile donates to The Hibbs Lupus Trust.  The products available are exactly the same and at the same price as the usual Amazon website – the…

We have joined the National Voices Charity and signed up to the statement of five principles which we believe need to guide decision making throughout the next phase of the of the Covid-19 response.  National Voices is the leading coalition of health and social care charities in England. We work together to strengthen the voice of patients,…

Mindfulness meditation is an effective way to train your mind and body to relax and to be more welcome and accepting of whatever comes your way. If you’ve never tried it, here’s your chance! Headspace makes learning meditation through mindfulness easy. You learn online (on your computer or using an app on a tablet or your phone)…

I was diagnosed with lupus (SLE) in 2012 at the age of 20. After suffering a week’s worth of consistent migraines, I wound up in hospital. Initially I was diagnosed with a blood clot on my brain, but later they realised it was a large amount of inflammation/swelling, but they still weren’t sure of the…

The first ever VIRTUAL edition of Prudential RideLondon is here & we want you to #CycleForLupus. Be part of the world’s biggest festival of cycling on 15 & 16 August. Free to enter & open to all.

No one should have to choose between their safety and their income. Please sign and share this petition calling for the furlough scheme to be extended to protect those who are shielding. Please share via email with family and friends and across social media.

Our reusable face masks are made with a dual layer water repellent coated polyester, as well as a soft-woven inner polyester with antimicrobial properties for superior comfort and protection.

We have joined the National Voices Charity and signed up to the statement of five principles which we believe need to guide decision making throughout the next phase of the of the Covid-19 response.  National Voices is the leading coalition of health and social care charities in England. We work together to strengthen the voice of patients,…

You could get your hands on a 100% recycled & sustainable Team Hibbs Lupus Trust t-shirt to celebrate World Environment Day. Made from plastic bottles, our fabric supplier has so far recycled over 13 billion bottles, which they’re now turning into award winning Qwick-Dri™ technical sportswear. 13 billion bottles? If placed end to end, that would…

If you’ve been #shielding in England, will you now ‘safely go outside’? Our latest information on COVID19 can be found here. If you would like to share your experience of lupus and be featured on the blog we would love to hear from you! Send us a message! Join the conversation on our Facebook Page!