Embrace the New Week
Happy Monday! The Hibbs Lupus Trust wishes you a wonderful start to your week. We hope this message finds you well and full of optimism as we stand together in our shared mission. It’s a new day, a new week, and a new opportunity for us all to make a difference in the lives of…
Unleash Your Adventurous Side: 2025 Challenges Are Now Live!
Exciting News! We are thrilled to announce that The Hibbs Lupus Trust’s 2025 Challenges are officially LIVE! Get ready to step out of your comfort zone and embrace the spirit of adventure. This year, we have a plethora of exhilarating challenges that will push your limits, fuel your passion, and most importantly, raise vital funds…
Celebrating Global Accessibility Awareness Day: Empowering Lupus Patients through Inclusivity
Today, as we commemorate the Global Accessibility Awareness Day (GAAD), we at The Hibbs Lupus Trust are excited to raise awareness and promote the importance of digital accessibility for everyone, including individuals living with lupus. It is vital to recognise the unique challenges faced by lupus patients and emphasise the need for accessible technology in…
Embracing Mental Health Awareness Week 2023
As we celebrate Mental Health Awareness Week, it’s crucial to acknowledge the unique challenges faced by lupus patients in maintaining their mental well-being. Living with lupus, a chronic autoimmune disorder, can be physically and emotionally demanding, making it even more important to prioritise mental health. In this blog post, we’ll explore the connection between lupus…
Lupus and Gentle Exercise
Living with lupus can be a challenging and often unpredictable experience. As an autoimmune disease, lupus can cause a wide range of symptoms, including joint pain, fatigue, and inflammation. While there is currently no cure for lupus, there are ways to manage symptoms and improve overall health and wellbeing. One such way is through gentle…
Thank you, James!
Meet James, a devoted husband and father who recently ran the London Marathon to support his wife Alice, who lives with lupus. Lupus is a chronic autoimmune disease that affects millions of people worldwide, causing inflammation, pain, and fatigue. Alice was diagnosed with lupus in 2013, and since then, James has been by her side,…
Take on a Charity Challenge in 2023
Are you looking for a way to challenge yourself and make a positive impact in the world? Consider taking on a charity challenge in 2023 and supporting the Hibbs Lupus Trust. Not only will you push yourself to new limits, but you’ll also be contributing to a vital cause that supports those affected by lupus.…
Fellow Lupus Warriors
Dear fellow lupus warriors, We want you to know that you are seen, heard, and supported. Your strength and resilience in the face of this chronic autoimmune disease is truly inspiring. We understand that living with lupus can be challenging, and it may feel like you are fighting a battle every single day. But, we…
giving Tuesday 2022
Since 2012, Giving Tuesday has been celebrated on the Tuesday after Black Friday & Cyber Monday to encourage people to do good. With your help we can be there for more people living with lupus. A £15 donation will provide a care pack for patients experiencing a flare. “I received my care pack today, what…
Charity Christmas eCards 2022
Help support people living with lupus this Christmas by sending festive eCards to your loved ones. Brighten someone’s day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message, donation and click send!
Joint letter to the Chancellor ahead of the Autumn Statement
We are deeply concerned about the impact the cost of living crisis is having and will have on people living with ill health and disability, and their carers.
Lupus in Pregnancy
Every year, many women diagnosed with lupus become pregnant and go on to have a healthy baby. However, lupus increases the chances of problems.
Heatwave Tips To Keep Cool
Stay cool indoors – many of us will need to stay safe at home this summer so know how to keep your home cool.
UK Heat Wave
Don’t forget your water, sun screen and a sun hat when you are out and about this week. Avoid excess sun exposure as sunlight can cause a lupus rash or even trigger a serious flare of the disease itself. We’d love to see you wearing your sun hats, tag us in your social media photos!…
Thank you Lilly, Jessica, Daisy and Matthias
Dear Lilly, Jessica, Daisy and Matthias, I was so excited to receive your letter this week and read about your wonderful fundraising efforts at school. Your teacher, Mr Holt, has told me about the amazing children in Year 6 at Birkenshaw C.E. (C) Primary School and the outstanding work you have all been doing in…
Shop Amazon Prime Day Deals & Raise Funds For Free – 12th and 13th July 2022
If you shop Amazon Prime Day deals between 12th and 13th July 2022, you can make a difference: Simply shop at www.smile.amazon.co.uk or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile will DOUBLE donations to The Hibbs Lupus Trust at no extra cost. The products available are exactly the same and at the same price as…
In loving memory of Moira Bain
It is with great sadness that we announce the unexpected passing of our beloved Moira Bain. Nan to Viki & John, Moira has been our biggest champion. She has taken part in walks, constantly dressed up in fabulous costumes to host information stands and has been raising awareness and funds at more car boot sales…
2nd Anniversary of the First UK Lockdown.
Today on the 2nd anniversary of the first UK lockdown, we, along with 70 other organisations reflect on the toll that Covid has taken, and continues to take on people throughout the country. Two years on, the government have just launched their ‘Living with Covid’ plan which involves lifting most of the protective measures put…
Go Purple & Celebrate World Lupus Day 2022
Between the 6th and 13th May we’ll be celebrating and we’d love for you to join in! In celebration of World Lupus Day on 10th May we want you to Go Purple between 6th – 13th May. Whether you’re at home, school or work, getting involved couldn’t be simpler! You could Go Purple for a day…
Just Launched – Jurassic Coast Trek!
Our Newest Charity Challenge is Live Now! We’re really excited to reveal that we’ve added a brand new charity challenge to our calendar for 2022 – the Jurassic Coast Trek! Supporters can join us as we explore England’s only natural World Heritage Site, where dramatic coastal views and iconic landmarks await. Our two-day journey encompasses the…
Double donations for The Hibbs Lupus Trust
Did you know that you can help us raise funds for FREE just by shopping online? Double Donations Week is back – a whole week of 2x donations when your supporters shop at participating stores, including John Lewis, Currys, TUI, Debenhams, MADE, QVC and over 20 more! From Monday 28th February to Sunday 6th March…
New Fundraising Platform
We are super excited to launch our own fundraising platform! Create YOUR personalised campaign page or start a team with friends and together we will beat lupus! Take a look around now!
Charity Christmas eCards 2021
Help support people living with lupus this Christmas by sending festive eCards to your loved ones. Brighten someone’s day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message, donation and click send!
Black Friday Charity Fundraising 2021
Grabbing a #BlackFriday bargain? Black Friday might not be until 26th November, but the offers are already live! Use GiveasyouLive or Amazon Smile when you shop online to generate free donations for us too! Money raised will enable us to provide more support to people affected by lupus. Thank you!
GREAT BIRMINGHAM RUN 2022
Birmingham’s biggest and best running events return to the city’s streets in May 2022. Take your place on the Great Birmingham Run 10k or half marathon start line and be part of the celebration. Join #TeamHibbsLupusTrust on 1st May 2022. We are always grateful for your support and for any funds you can raise for us.…
Spooktacular Halloween Fancy Dress Competition
Join us and take part in our Spooktacular Halloween Virtual Fancy Dress Competition! Head over to our Halloween page to and enter today! We can’t wait to see your spooky themed costumes!
Good Luck Toni & Sarah – London Marathon 2021
Good luck to Sarah & Toni who are running the London Marathon on Sunday to raise awareness of lupus. Their dedication to the cause is admiral. Preparing for those 26.2 miles is no mean feat; the hours of training, the sacrifices made and the effort will ready them both but what will keep them placing…
London Marathon Ballot 2022
Join #TeamHibbsLupusTrust at the London Marathon – 2nd October 2022. The London Marathon 2022 ballot is open from Sunday 3rd October 2021 until 21:00 on Friday 8th October 2021. If you are successful in the London Marathon public ballot for 2022 we would be delighted to have you join Team Hibbs Lupus Trust. We are…
Skydive FREE!
Test your nerve with a tandem skydive! Imagine standing at the edge of an open doorway in an aircraft flying at 10,000 feet – the noise of the engines and the wind ringing in your ears with only the outline of distant fields below. Now imagine leaning forward out of that doorway and letting go…
Explore Hadrian’s Wall
Explore Hadrian’s Wall as we trek 25km from Housesteads Roman Fort to Wall Town National Park Centre, encompassing the most fascinating of ruins. Hadrian’s Wall was built in AD122 on the orders of the Roman Emperor Hadrian, and stretched from the East to West coasts of Britain from Bowness on Solway in the West to…
Joint letter to the Prime Minister urging him to reconsider lifting virtually all infection control measures
On July 13 National Voices sent a joint letter to Prime Minister Boris Johnson signed and endorsed by nearly 60 member organisations including The Hibbs Lupus Trust asking him to urgently reconsider the decision to lift virtually all infection control measures. The letter said that to National Voices members it is becoming apparent that a…
A compassionate conversation can go a long way.
National Voices and Centre for Mental Health have been speaking to people with long-term physical conditions and found they need more help and understanding from health professionals to support their mental health. They have launched a report and campaign called #AskHowIAm. We are proud to work alongside National Voices and support this campaign calling for compassionate…
Shop Amazon Prime Day Deals & Raise Funds For Free – 21st – 22nd June 2021
If you shop Amazon Prime Day deals between 21st – 22nd June, you can make a difference: Simply shop at www.smile.amazon.co.uk or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile will DOUBLE donations to The Hibbs Lupus Trust at no extra cost. The products available are exactly the same and at the same price as the…
Lupus Walk 2021
Sadly our walk will be a little different this year, but just like our walks on Cannock Chase, we want to celebrate World Lupus Day and the courage of lupus warriors around the world. Even apart, we’re in this together. Once again this year we’d like you all to ‘Turn Purple’ whether it’s a purple…
Captain Tom 100
We’re inviting you, your family and friends to take part in Captain Tom 100 from Friday 30 April to Bank Holiday Monday 3 May 2021 to celebrate Captain Sir Tom Moore’s amazing achievements and raise vital funds for The Hibbs Lupus Trust!
London Marathon Ballot 2021
Want to run 26.2 miles for lupus patients across the UK? If you receive a #LondonMarathon ballot place today, get in touch with us to find out how you can make a difference for people living with lupus! There is no fundraising target, just raise what you can! The London Marathon 2021 will take place…
Lockdown Stress & Anxiety – Headspace Mindfulness Gift
With another national lockdown upon us, we’re gifting one 12 month subscription, and five 1 month subscriptions to Headspace thanks to the generous donations we have received. Mindfulness meditation is an effective way to train your mind and body to relax and to be more welcome and accepting of whatever comes your way. If you’ve…
Reusable Lupus Face Mask
Our reusable face masks are made with a dual layer water repellent coated polyester, as well as a soft-woven inner polyester with antimicrobial properties for superior comfort and protection. Key Features: 100% water-repellent polyester with dust-proof membrane. Antimicrobial comfort layer. Washable & reusable. Enhanced Qwick-Dri™ wicking technology. These products feature ear loops. Place the mask over the…
Charity Christmas eCards
Help support people living with lupus this Christmas by sending festive eCards to your loved ones. Brighten someone’s day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message, donation and click send!
Amazon Donates
Same products, same experience. When you shop AmazonSmile, Amazon will make a donation to The Hibbs Lupus Trust. Help us support more people living with lupus! Support us every time you shop!
Christmas Jumper Fun
It is time! Dig our your Christmas Jumper and help support people living with lupus. Post a selfie wearing your Christmas Jumper, donate £3 and feature in our supporter’s gallery. With your support, The Hibbs Lupus Trust can make sure that no one has to face lupus alone. £15 provides a care pack to patients…
Charity Tuesday 2020
We know this December may be very different from the usual. We know this year has been a difficult one for us all. As we come to the end of 2020 we want to give you a chance to take something positive from this year and help make a real difference. With your help we…
Black Friday Charity Fundraising
Grabbing a #BlackFriday bargain? Black Friday might not be until 27th November, but the offers are already live! Use GiveasyouLive or Amazon Smile when you shop online to generate free donations for us too! Money raised will enable us to provide more support to people affected by lupus. Thank you!
Lupus Care Pack
Knowing that it can be the little things that make a difference when the force of a flare strikes, we hope these packs will bring a little relief and a smile to someone going through a tough time. You can nominate someone who you would like to send a care pack to and we…
Headspace Subscription Gift
With a second lockdown upon us, we’re gifting one 12 month subscription, and five 1 month subscriptions to Headspace thanks to the generous donations we have received. Mindfulness meditation is an effective way to train your mind and body to relax and to be more welcome and accepting of whatever comes your way. If you’ve…
Halloween Pumpkin Trail
The pumpkin spotting trail is a COVID-secure activity for Halloween instead of trick or treating. A new idea has been circulating social media proposing that rather than knocking on doors and handing out sweets, residents should put a pumpkin in their window. On the evening of October 31, trick or treaters should instead take part…
Shop Amazon Prime Day Deals & Raise Funds For Free
If you shop Amazon Prime Day deals on 13 & 14 October, you can make a difference: Simply shop at www.smile.amazon.co.uk or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile donates to The Hibbs Lupus Trust. The products available are exactly the same and at the same price as the usual Amazon website – the…
Five principles for managing the next phase of the Covid-19 pandemic
We have joined the National Voices Charity and signed up to the statement of five principles which we believe need to guide decision making throughout the next phase of the of the Covid-19 response. National Voices is the leading coalition of health and social care charities in England. We work together to strengthen the voice of patients,…