Nurturing Mental Health: A Compassionate Guide for Lupus Patients and Families

During Mental Health Awareness Week, The Hibbs Lupus Trust stands in solidarity with lupus patients and their families, recognising the intricate dance between physical health and mental well-being. Living with lupus presents a unique set of challenges, often intertwining with emotional hurdles that require compassion, understanding, and practical support. In this special news post, we…

World Lupus Day: Let’s Connect and Support!

As we commemorate World Lupus Day on May 10th, The Hibbs Lupus Trust extends a heartfelt call to action. This day holds profound significance for the millions of individuals worldwide battling lupus, a chronic autoimmune disease that affects people of all ages, genders, and ethnicities. At the heart of our mission lies not only raising…
The Hibbs Family Standing Together

Celebrating World Lupus Day with the Hibbs Lupus Trust

Today, on World Lupus Day, the Hibbs Lupus Trust extends its warmest regards and heartfelt gratitude to the resilient and supportive lupus community worldwide. As a UK charity dedicated to raising awareness and providing support for those affected by lupus, we recognise the strength and unity that binds us together in the fight against this…
Two London Marathon Runners with their Medals

London Marathon 2025 Ballot

We don't receive any official charity places for events like the London Marathon. Instead, we rely solely on the goodwill and enthusiasm of supporters like you.

Running for Rachel: A Heartfelt Thank You to Kellie and Todd

As the London Marathon draws near, we are overwhelmed with gratitude and pride as we extend our heartfelt thanks to two remarkable individuals: Kellie and Todd.

Understanding Lupus Flares: Navigating Challenges and Providing Support

A lupus flare is a sudden worsening of symptoms, ranging from fatigue, joint pain, rashes, to organ inflammation.
image of inside a pharmacy

Prescription Charges Increase Disappoints the Hibbs Lupus Trust

The Hibbs Lupus Trust stands in solidarity with individuals facing these challenges, advocating for fair and equitable access to healthcare.
Hospital Nurse pushing patient in wheelchair.

The Hibbs Lupus Trust Stands for ‘My Health, My Right’ on World Health Day 2024

On this World Health Day, we reaffirm our commitment to advocating for the rights of individuals with lupus and standing in solidarity with the global community in promoting health equity and access for all.
Photo of Durdle Door on the Jurassic Coast

Jurassic Coast Trek

Calling all adventure-seekers and nature enthusiasts! The Hibbs Lupus Trust invites you to join us on an exhilarating journey along England's majestic Jurassic Coast.

Lupus and Sleep: Navigating Restful Nights

We'll delve into the relationship between lupus and sleep, along with practical tips and advice for achieving better rest.
The Hibbs Lupus Trust logo on a purple background

Join Us in Painting the World Purple for World Lupus Day!

As we approach World Lupus Day on May 10th, we invite you to join us in making a powerful statement of solidarity and support for those affected by lupus.
News Post - The Hibbs Lupus Trust

Embracing a New Week with Hope and Resilience

We remain committed to supporting individuals and families affected by lupus, providing resources, education, and advocacy to empower and uplift. Together, we can face the challenges of the week ahead with strength and resilience.
NHS Prescription Charges - The Hibbs Lupus Trust

Freeze The Prescription Charge

Living with a long-term health condition like lupus can significantly increase the everyday expenses we face. From heightened heating bills to powering assistive technology devices, the financial burden can be overwhelming. Currently, each prescription item costs £9.65, and there’s talk of increasing this charge. For those of us reliant on medication to manage our conditions,…
Friends smiling at each other hold hot chocolate at Christmas.

Empowering Lupus Warriors: Setting Boundaries for a Healthy Festive Season

The festive season, synonymous with joy, unity, and celebration, can present unique challenges for individuals battling lupus. At The Hibbs Lupus Trust, we’re committed to enabling our lupus community to confidently manage their well-being during the holiday period. A fundamental aspect of this is the establishment of boundaries – an empowering strategy for navigating social…

A Heartfelt Thank You: The Big Bird 5K 2023

First and foremost, our deepest gratitude goes to Kellie and her family, whose unwavering commitment to the Hibbs Lupus Trust continues to inspire us all. The Big Bird 5K wouldn’t be possible without their dedication, hard work, and passion for making a difference in the lives of those affected by lupus. Kellie, you are a…
Santa holding a Hot Chocolate

Celebrate the Season of Giving with Hibbs Lupus Trust eCards

This holiday season, spread joy and support a great cause with the Hibbs Lupus Trust Christmas E-Cards. Our selection of festive e-cards not only conveys warm wishes but also contributes to the fight against lupus. Visit to explore our diverse range of designs, from classic winter scenes to vibrant modern illustrations. Whether you’re sending greetings to…
Trust founder Viki and John sitting in a park

Join Us in Making a Difference this Giving Tuesday!

As Giving Tuesday approaches, The Hibbs Lupus Trust is gearing up for a day dedicated to generosity, kindness, and making a positive impact in the lives of those affected by lupus. This global day of giving, which falls on Tuesday 28 November 2023, is a powerful reminder of the spirit of philanthropy that defines the…
eCards Christmas Santa - The Hibbs Lupus Trust

Light Up the Season with Hope: The Hibbs Lupus Trust Christmas Jumper Campaign

Warm festive greetings from the Hibbs Lupus Trust! As the holiday season approaches, we are excited to launch our Christmas Jumper Campaign and invite you to join us in spreading joy, warmth, and hope to those affected by lupus. Campaign Overview: This Christmas, we’re not just donning our cosiest Christmas jumpers; we’re wrapping ourselves in…
Wife with hands on husbands shoulders comforting him.

Caring for a Loved One with Lupus: A Compassionate Guide by The Hibbs Lupus Trust

Caring for someone with lupus requires patience, understanding, and compassion. Remember, it's also crucial for caregivers to look after their well-being.

Join the Lupus Movement: Follow, Like, Share, and Stand in Solidarity!

At the Hibbs Lupus Trust, we believe in the power of community, support, and advocacy. Our mission is to raise awareness about lupus, support those affected by it, and contribute to ongoing research for a cure. Today, we’re reaching out to YOU, our incredible supporters, to help us amplify our impact and spread the word…
Lady sitting on floor doing yoga.

Stay Active and Healthy: Exercise Routines Tailored for Lupus Patients

Living with lupus can present unique challenges, but maintaining an active and healthy lifestyle is crucial for overall well-being. At the Hibbs Lupus Trust, we understand the importance of staying active while managing the symptoms of lupus. In this blog post, we’ll explore exercise routines specially tailored for lupus patients to help you stay fit,…
Team Alice - Hibbs Lupus Trust 2

Embrace World Kindness Day: Extend a Hand to Those Battling Lupus

On this World Kindness Day, the Hibbs Lupus Trust urges everyone to join hands in spreading compassion and understanding. Kindness has the power to create ripples of positivity, and this year, we encourage you to extend your kindness to those facing the challenges of lupus. Lupus is an autoimmune disease that affects millions of people…
Woman looking tired holding glasses and hand covering eyes

The Invisible Struggle: Fatigue Associated with Lupus

Living with lupus can be an uphill battle, as those affected face a range of symptoms that can vary in intensity and impact on daily life. Among these symptoms, one that stands out and is often overlooked is fatigue. Fatigue associated with lupus can be debilitating and pervasive, affecting not only the physical but also…
Close Up Photo of Woman with Lupus

What Is Lupus?

Lupus is a chronic autoimmune disease that affects millions of people worldwide, but its understanding and recognition remain limited. The Hibbs Lupus Trust is dedicated to raising awareness and supporting individuals affected by lupus, so it’s essential to dive into the fundamental question: What is lupus? In this post, we’ll explore the intricacies of this…
Questions and Answers logo on purple background

Unraveling the Mystery: Common Questions About Lupus

Lupus is a complex and multifaceted disease that often leaves patients and their loved ones with numerous questions. At The Hibbs Lupus Trust, we believe in the power of information. Here, we delve into some of the most common questions about lupus, providing you with a better understanding of this chronic illness. Lupus is a…

Join the Hibbs Lupus Trust Fundraising Movement!

Are you ready to make a real impact on the lives of people battling lupus? The Hibbs Lupus Trust invites you to be a part of something extraordinary. With your support, we can continue our mission to raise awareness, provide essential resources, and make a tangible difference in the lives of those affected by lupus.…

The Big Bird 5km Run 2023

The Hibbs Lupus Trust is delighted to announce the return of The Big Bird 5km Run in 2023! This spectacular event, hosted by our fantastic supporter Kellie, is set to take place at 10 am on Sunday, 26th November 2023, in Wolverhampton’s East Park. We look back on last year’s run with immense gratitude. The…
The Hibbs Lupus Trust - Mental Health

Embracing Mental Health As Part of Your Lupus Journey

At the Hibbs Lupus Trust, we acknowledge the importance of mental health, especially for individuals living with lupus. Today, on World Mental Health Day, we take this opportunity to shed light on the often overlooked psychological aspects of this chronic disease. Living with lupus can be challenging. The unpredictable nature of the disease, the physical…
The Hibbs Lupus Trust - Holistic Wellness

Unlocking the Benefits of Holistic Wellness for Lupus Patients

Living with lupus can be challenging, but incorporating holistic wellness practices into your daily routine can significantly improve your overall well-being. The Hibbs Lupus Trust is dedicated to raising awareness and supporting lupus patients in their journey to better health. In this blog post, we will explore the benefits of holistic wellness and provide practical…
Man giving thumbs up and smiling.

Embrace the New Week

Happy Monday! The Hibbs Lupus Trust wishes you a wonderful start to your week. We hope this message finds you well and full of optimism as we stand together in our shared mission. It’s a new day, a new week, and a new opportunity for us all to make a difference in the lives of…
The Hibbs Lupus Trust - Kilamanjaro Sign Photo

Unleash Your Adventurous Side: 2025 Challenges Are Now Live!

Exciting News! We are thrilled to announce that The Hibbs Lupus Trust’s 2025 Challenges are officially LIVE! Get ready to step out of your comfort zone and embrace the spirit of adventure. This year, we have a plethora of exhilarating challenges that will push your limits, fuel your passion, and most importantly, raise vital funds…
Woman sitting in a wheelchair holding a laptop.

Celebrating Global Accessibility Awareness Day: Empowering Lupus Patients through Inclusivity

Today, as we commemorate the Global Accessibility Awareness Day (GAAD), we at The Hibbs Lupus Trust are excited to raise awareness and promote the importance of digital accessibility for everyone, including individuals living with lupus. It is vital to recognise the unique challenges faced by lupus patients and emphasise the need for accessible technology in…
Mental Health Awareness - The Hibbs Lupus Trust 2

Embracing Mental Health Awareness Week 2023

As we celebrate Mental Health Awareness Week, it’s crucial to acknowledge the unique challenges faced by lupus patients in maintaining their mental well-being. Living with lupus, a chronic autoimmune disorder, can be physically and emotionally demanding, making it even more important to prioritise mental health. In this blog post, we’ll explore the connection between lupus…
Exercise - The Hibbs Lupus Trust

Lupus and Gentle Exercise

Living with lupus can be a challenging and often unpredictable experience. As an autoimmune disease, lupus can cause a wide range of symptoms, including joint pain, fatigue, and inflammation. While there is currently no cure for lupus, there are ways to manage symptoms and improve overall health and wellbeing. One such way is through gentle…
Lupus Runner James Finishing the London Marathon.

Thank you, James!

Meet James, a devoted husband and father who recently ran the London Marathon to support his wife Alice, who lives with lupus. Lupus is a chronic autoimmune disease that affects millions of people worldwide, causing inflammation, pain, and fatigue. Alice was diagnosed with lupus in 2013, and since then, James has been by her side,…
The Hibbs Lupus Trust Challenge - Jumping into Open Water Pool

Take on a Charity Challenge in 2023

Are you looking for a way to challenge yourself and make a positive impact in the world? Consider taking on a charity challenge in 2023 and supporting the Hibbs Lupus Trust. Not only will you push yourself to new limits, but you’ll also be contributing to a vital cause that supports those affected by lupus.…
Trust founder Viki and John sitting in a park

Fellow Lupus Warriors

Dear fellow lupus warriors, We want you to know that you are seen, heard, and supported. Your strength and resilience in the face of this chronic autoimmune disease is truly inspiring. We understand that living with lupus can be challenging, and it may feel like you are fighting a battle every single day. But, we…
Lupus Patient with Head in hands

giving Tuesday 2022

Since 2012, Giving Tuesday has been celebrated on the Tuesday after Black Friday & Cyber Monday to encourage people to do good. With your help we can be there for more people living with lupus. A £15 donation will provide a care pack for patients experiencing a flare.  “I received my care pack today, what…
Hibbs Lupus Trust Christmas eCard

Charity Christmas eCards 2022

Help support people living with lupus this Christmas by sending festive eCards to your loved ones. Brighten someone’s day by sending them a Hibbs Lupus Trust charity eCard. Just pick a design, add your message, donation and click send!
UK Lockdown - The Hibbs Lupus Trust

Joint letter to the Chancellor ahead of the Autumn Statement

We are deeply concerned about the impact the cost of living crisis is having and will have on people living with ill health and disability, and their carers.
Hibbs Lupus Trust Pregnancy 2

Lupus in Pregnancy

Every year, many women diagnosed with lupus become pregnant and go on to have a healthy baby. However, lupus increases the chances of problems.
Lupus Heatwave - The Hibbs Lupus Trust

Heatwave Tips To Keep Cool

Stay cool indoors – many of us will need to stay safe at home this summer so know how to keep your home cool.
Viki Hibbs - The Hibbs Lupus Trust

UK Heat Wave

Don’t forget your water, sun screen and a sun hat when you are out and about this week. Avoid excess sun exposure as sunlight can cause a lupus rash or even trigger a serious flare of the disease itself. We’d love to see you wearing your sun hats, tag us in your social media photos!…
The Hibbs Lupus Trust Family

Thank you Lilly, Jessica, Daisy and Matthias

Dear Lilly, Jessica, Daisy and Matthias, I was so excited to receive your letter this week and read about your wonderful fundraising efforts at school. Your teacher, Mr Holt, has told me about the amazing children in Year 6 at Birkenshaw C.E. (C) Primary School and the outstanding work you have all been doing in…
Amazon Prime - The Hibbs Lupus Trust

Shop Amazon Prime Day Deals & Raise Funds For Free – 12th and 13th July 2022

If you shop Amazon Prime Day deals between 12th and 13th July 2022, you can make a difference: Simply shop at or with AmazonSmile ON in the Amazon Shopping app, and AmazonSmile will DOUBLE donations to The Hibbs Lupus Trust at no extra cost.  The products available are exactly the same and at the same price as…
Moira Bain - The Hibbs Lupus Trust

In loving memory of Moira Bain

It is with great sadness that we announce the unexpected passing of our beloved Moira Bain. Nan to Viki & John, Moira has been our biggest champion. She has taken part in walks, constantly dressed up in fabulous costumes to host information stands and has been raising awareness and funds at more car boot sales…
UK Lockdown - The Hibbs Lupus Trust

2nd Anniversary of the First UK Lockdown. 

Today on the 2nd anniversary of the first UK lockdown, we, along with 70 other organisations reflect on the toll that Covid has taken, and continues to take on people throughout the country. Two years on, the government have just launched their ‘Living with Covid’ plan which involves lifting most of the protective measures put…
The Hibbs Lupus Trust Charity

Go Purple & Celebrate World Lupus Day 2022

Between the 6th and 13th May we’ll be celebrating and we’d love for you to join in! In celebration of World Lupus Day on 10th May we want you to Go Purple between 6th – 13th May.  Whether you’re at home, school or work, getting involved couldn’t be simpler! You could Go Purple for a day…