Our Privacy Policy

Privacy matters but it can be confusing. This page explains our approach to privacy on our website and how it affects you.

We will look after any personal information that you share with us. This is central to our values as an organisation. We want everyone who supports us, or who comes to us for support, to feel confident about how any personal information they share will be looked after or used.

You can be confident that:

  • We only use personal information in the ways we need to and that is expected of us.
  • We will keep you up to date with our work, including how we are campaigning to improve services, raising awareness, promoting understanding as well as our fundraising activities.
  • But, we only use your personal information to do this if you have previously told us that’s OK.
  • We will make it easy for you to tell us how you want us to communicate with you, including how to opt out from future communications - and we promise your request will respected straight away.
  • We will never release your information to organisations outside The Hibbs Lupus Trust for their marketing purposes.
  • We will be especially careful and sensitive when engaging with vulnerable people or those we have reason to believe might be vulnerable
  • We take all reasonable care to safeguard your personal information through security policies and secure business processes.

Information we collect and why we use it

Personal Information

Personal information we collect includes details such as your name, date of birth, email address, postal address, telephone number and credit/debit card details (if you are making a purchase or donation), as well as information you provide in any communications between us. You will have given us this information whilst making a donation, registering for an event, placing an order on our website or any of the other ways to interact with us.

We will mainly use this information:

  • To process your donations or other payments, to claim Gift Aid on your donations and verify any financial transactions.
  • To provide the services or goods that you have requested.
  • To update you with important administrative messages about your donation, an event or services or goods you have requested.
  • To comply with the Charities (Protection and Social Investment) Act 2016 and follow the recommendations of the official regulator of charities, the Charity Commission, which require us to identify and verify the identity of supporters who make major gifts so we can assess any risks associated with accepting their donations.
  • To keep a record of your relationship with us.
  • Where you volunteer with us, to administer the volunteering arrangement.

If you do not provide this information, we will not be able to process your donation, sign you up for a particular event or provide goods and services you have requested.

We may also use your personal information:

  • To contact you about our work and how you can support The Hibbs Lupus Trust.
  • To invite you to participate in surveys or research.

Sensitive Personal Information

If you share your personal experience or the experiences of a friend or relative, we may also collect this health information. If you provide us with any Sensitive Personal Information by telephone, email or by other means, we will treat that information with extra care and confidentiality and always in accordance with this Privacy Policy.

You can of course decide if you want to remain anonymous, if you are happy to share your personal details with staff members or if you would like us to share your story with the media or other parties as part of our work telling people’s personal stories about mental health (for example, on our blog).

A special note about the Sensitive Personal Information we hold

Data Protection Law recognises that some categories of personal information are more sensitive. Sensitive Personal Information can include information about a person’s health, race, ethnic origin, political opinions, sex life, sexual orientation or religious beliefs.

If you contact us through our Helplines or in other more general communications with us such as blogs or emails, you may choose to provide details of a sensitive nature.

We will only use this information:

For the purposes of dealing with your enquiry, training, and quality monitoring or evaluating the services we provide. We will not pass on your details to anyone else without your express permission except in exceptional circumstances. Examples of this might include anyone reporting serious self-harm or posing a threat to others or children contacting us and sharing serious issues such as physical abuse or exploitation.

Where you have given us your express consent or otherwise clearly indicated to us (for example, by submitting your story through our 'Your Stories' website page) that you are happy for us to share your story, then we may publish it on our blog or in other media.

How long we hold your information for

We only keep it as long as is reasonable and necessary for the relevant activity, which may be to fulfil statutory obligations (for example, the collection of Gift Aid).

Marketing

We may send you email notifications you have specifically requested (such as newsletters or notifications when a report is completed). You have the ability to opt out of any of this communication at any time.

We will never provide your personal information or email address to any third parties except where they are specifically employed to help deliver our own services, as detailed above.

You can update your choices or stop us sending you these communications at any time by contacting 'hello@hibbslupustrust.org’ or clicking the unsubscribe link at the bottom of the relevant communication.

Security

The Hibbs Lupus Trust take many precautions to prevent the loss, misuse or alteration of your personal information. These precautions include:

  • Use of SSL encryption for sensitive data
  • Hardware stored in secured datacentres behind firewalls
  • All access to information restricted by password and/or secure key
  • Restrictions to what information can be accessed via any location

Whilst we take great care to ensure any confidential information remains protected we cannot guarantee the security of data sent over the Internet.

Of course you are responsible for keeping your password and user details confidential. Nobody at The Hibbs Lupus Trust will ever ask you for your password, so please don’t trust anybody asking you for it.

Measuring our visitors

We measure visitors to our website using Google Analytics. This records what pages you view within our site, how you arrived at our site and some basic information about your computer. All of that information is anonymous – so we don’t know who you are; just that somebody visited our site.

The information we collect from analytics helps us understand what parts of our sites are doing well, how people arrive at our site and so on. Like most websites, we use this information to make our website better.

You can learn more about Google Analytics or opt out if you wish.

Facebook, Twitter and other social networks

These services provide social buttons and similar features which we use on our website – such as the “Like” and “Tweet” buttons.

To do so we embed code that they provide and we do not control ourselves. To function their buttons generally know if you’re logged in; for example Facebook use this to say “x of your friends like this”. We do not have any access to that information, nor can we control how those networks use it.

Social networks therefore could know that you’re viewing this website, if you use their services (that isn’t to say they do, but their policies may change). As our website is remarkably inoffensive we imagine this is not a concern for most users.

Updates to this policy

We may update this privacy policy from time-to-time, particularly as technology changes. You can always check this page for the latest version. We may also notify you of changes to our privacy policy by email.

Any questions?

If you have any questions about this privacy policy or your personal data, please write to us by email to hello@hibbslupustrust.org

 

This Privacy Policy (version 1.3) was last updated on 21/05/2018