Posts Tagged ‘Lupus Support’
Embrace the New Week
Happy Monday! The Hibbs Lupus Trust wishes you a wonderful start to your week. We hope this message finds you well and full of optimism as we stand together in our shared mission. It’s a new day, a new week, and a new opportunity for us all to make a difference in the lives of…
Read MoreCelebrating Global Accessibility Awareness Day: Empowering Lupus Patients through Inclusivity
Today, as we commemorate the Global Accessibility Awareness Day (GAAD), we at The Hibbs Lupus Trust are excited to raise awareness and promote the importance of digital accessibility for everyone, including individuals living with lupus. It is vital to recognise the unique challenges faced by lupus patients and emphasise the need for accessible technology in…
Read MoreEmbracing Mental Health Awareness Week 2023
As we celebrate Mental Health Awareness Week, it’s crucial to acknowledge the unique challenges faced by lupus patients in maintaining their mental well-being. Living with lupus, a chronic autoimmune disorder, can be physically and emotionally demanding, making it even more important to prioritise mental health. In this blog post, we’ll explore the connection between lupus…
Read MoreFellow Lupus Warriors
Dear fellow lupus warriors, We want you to know that you are seen, heard, and supported. Your strength and resilience in the face of this chronic autoimmune disease is truly inspiring. We understand that living with lupus can be challenging, and it may feel like you are fighting a battle every single day. But, we…
Read MoreJoint letter to the Chancellor ahead of the Autumn Statement
We are deeply concerned about the impact the cost of living crisis is having and will have on people living with ill health and disability, and their carers.
Read MoreUK Heat Wave
Don’t forget your water, sun screen and a sun hat when you are out and about this week. Avoid excess sun exposure as sunlight can cause a lupus rash or even trigger a serious flare of the disease itself. We’d love to see you wearing your sun hats, tag us in your social media photos!…
Read MoreLockdown Stress & Anxiety – Headspace Mindfulness Gift
With another national lockdown upon us, we’re gifting one 12 month subscription, and five 1 month subscriptions to Headspace thanks to the generous donations we have received. Mindfulness meditation is an effective way to train your mind and body to relax and to be more welcome and accepting of whatever comes your way. If you’ve…
Read MoreFive principles for managing the next phase of the Covid-19 pandemic
We have joined the National Voices Charity and signed up to the statement of five principles which we believe need to guide decision making throughout the next phase of the of the Covid-19 response. National Voices is the leading coalition of health and social care charities in England. We work together to strengthen the voice of patients,…
Read MoreSupport Meetings Suspended
Both our Cannock and Coventry support meetings are suspended until further notice due to the coronavirus outbreak. Whether you want to share your own experiences of managing lupus, or learn more about the challenges and successes others have experienced, our online community will connect you with real people who share the same everyday experiences. Stay up to…
Read MoreWhat is lupus?
What is lupus? Lupus is a chronic and presently incurable illness of the immune system. When most people use the term ‘lupus’ they are usually referring to systematic lupus erythematosus (SLE) which is a type of lupus that can affect any body tissue and organ.
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